NINETY-NINE BALLOONS FOR ELIOT

Posted by Unknown On Saturday, November 14, 2009 4 comments
In the wee hours of the morning,I was greatly surprised when I received an e-mail from my son. I reckon this was the second time he had sent me an e-mail so happily I clicked to read and it was a one-liner telling me about the story of a video and how he knew I would love such emotional stories. When I saw the title, I sort of guessed the outcome of this story as I am sure you would too.

So who's Eliot and why is he so famous?

Elliot was born with an undeveloped lung, a heart with a hole in it and DNA that placed faulty information into each and every cell of his body. However, through this innocent life, God showed Himself through this boy who never uttered a word. He showed us that life is precious and that we should always treasure what we have in our lives.

In the midst of heartbreaking tragedy, the Mooney family found the presence of God strengthening, comforting, and guiding them. Their story reminds us to seek God and endure our struggles rather than blame Him for our hardships. It is always very easy to become negative during trials and temptations but the truth is, it is during such trying times that we become stronger when we see ourselves and God more clearly.

For more about Eliot's family, please CLICK THIS LINK.

This is sad, yet heart warming. God bless this family!

The family is from Fayetteville, AK. Get your tissues ready.

The powerful story of Elliot's 99 days represented by 99 balloons. How can we ever explain the overwhelming feeling of love found and then lost? This is for all parents out there who have gone through such a painful experience of losing one's precious child. It is unimaginable yet they go on with such courage, such spirit! This video reminds us of how precious life is and how profound God's gift is to us~ our children.



I watched this video so many times. Each time, I wipe the tears from my eyes when I see how this child holds on fighting for dear life. No one can ever understand God's plans for our lives. Sometimes, we may think we have everything in our hands. When we watch this video, we see how a loving baby with loving hands can steal our hearts. True, he suffered but God took the pain in tears away. Angels carried him through those pretty pearly gates of heaven and all that the parents can do now is to remember the 99 days they shared with Eliot.

For those of us who are parents, let us treasure our children and our families. For those of us who have parents, let us not forget how they took care of us when we were babies and to be always thankful for what we have and who we have in our lives.

Life is precious - treasure it!!!! Have a lovely day!

_________________________________________________

The following information about Trysomy 18 is taken from Wikipedia:

Trisomy 18 (T18) (also known as Trisomy E or Edwards Syndrome) is a genetic disorder caused by the presence of all or part of an extra 18th chromosome. It is named after John H. Edwards, who first described the syndrome in 1960. It is the second most common autosomal trisomy, after Down Syndrome, that carries to term.

Trisomy 18 is caused by the presence of three—as opposed to two—copies of chromosome 18 in a fetus or infant's cells. The incidence of the syndrome is estimated as one in 3,000 live births. The incidence increases as the mother's age increases. The syndrome has a very low rate of survival, resulting from heart abnormalities, kidney malformations, and other internal organ disorders.

Prognosis

The survival rate of Edwards Syndrome is very low. About 95% die in utero. Of liveborn infants, only 50% live to 2 months, and only 5–10% will survive their first year of life. Major causes of death include apnea and heart abnormalities. It is impossible to predict the exact prognosis of an Edwards Syndrome child during pregnancy or the neonatal period. The median life span is five to fifteen days. One percent of children born with this syndrome live to age ten, typically in cases of the less severe mosaic Edwards syndrome.

Features and characteristics

Infants born with Edwards syndrome may have some or all of the following characteristics: kidney malformations, structural heart defects at birth (i.e., ventricular septal defect, atrial septal defect, patent ductus arteriosus), intestines protruding outside the body (omphalocele), esophageal atresia, mental retardation, developmental delays, growth deficiency, feeding difficulties, breathing difficulties, and arthrogryposis (a muscle disorder that causes multiple joint contractures at birth).

Some physical malformations associated with Edwards syndrome include: a small head (microcephaly) accompanied by a prominent back portion of the head (occiput), low-set, malformed ears, abnormally small jaw (micrognathia), cleft lip/cleft palate, upturned nose, narrow eyelid folds (palpebral fissures), widely-spaced eyes (ocular hypertelorism), drooping of the upper eyelids (ptosis), a short breast bone, clenched hands, underdeveloped thumbs and or nails, absent radius, webbing of the second and third toes, clubfoot or Rocker bottom feet, and undescended testicles in males.

In utero, the most common characteristic is cardiac anomalies, followed by central nervous system anomalies such as head shape abnormalities. The most common intracranial anomaly is the presence of choroid plexus cysts, which is a pocket of fluid on the brain that is not problematic in itself but may be a marker for Trisomy 18. Sometimes excess amniotic fluid or polyhydramnios is exhibited.

4 comments to NINETY-NINE BALLOONS FOR ELIOT

  1. says:

    nick Good morning Sis,

    GOD is everywhere and HE reveals his presence in so many ways and most of them are so mysterious that we, his creation failed to perceive it. BUT HE is here, all around us, ever present in his compassion and merciful.

    To the Mooney family and other families who share the same tragic event in their lives, I pray that The ALMIGHTY give them strength, hope and faith. May they all be blessed in their lives.

    Have a nice day Sis and May GOD bless us all.

    Hamba.

  1. says:

    Unknown Good morning, Nick. You are up early on a Saturday morning.

    Thank you for being a compassionate person and for feeling with the Mooney family and others who have gone through such tragic experiences. Some are strong enough to be able to see God no matter how dark the circumstances and these lives are indeed an inspiration.

    Thank you also for your heartfelt prayer for these people.

    I cried again after watching this video for the umpteenth time. Maybe I am too weak for my own good but I realize, more than ever, how precious is life...and how important it is to cherish it...

    Take care and may the Almighty bless and keep us all.

    Warmest wishes,
    mws

  1. says:

    edward Dear Paula,

    As you said, no one can ever understand God's plans for our lives. In the course of my volunteer work I have come across some very sad stories. There was a case of a child in a remote village near ChiengMai that was raped at the tender age of 3. When I saw this child she had already turned 4 and was staying in an orphanage. When I first saw her without knowing her background and history, I saw a child whose eyes were filled with fear and confusion. I felt very sad that something so horrible can happen to someone so innocent. My heart cried silently and all I could do then was to pray for God's healing upon her life. Its at times like this that one's faith can be severely shaken. At least mine was. Its very hard to fathom why God had not intervened and save that child or others in the threshold of impending calamity. Having said , I am also aware that God is kind and benevolent. If we do not question God on the many blessings that come our way then its not fair to blame him in times of trouble. Till today I am still searching for a deeper understanding despite our earlier premise that we can never understand God.

    What touches me deeply in the video is Eliot's parents undying love for him. Despite knowing Eliot's poor prognosis they never stop celebrating his life and be joyful of his birth. Perhaps the key lies in their tremendous faith in God. Perhaps they are well aware that our existence on earth is but a sojourn and its not the quantity of years we live that matters but the quality. They did everything in their power to give Eliot a quality life, short as it was. Faith, faith and faith...perhaps there lies the answer to my neverending question.

    Take care Paula and wish you a beautiful weekend with your family.

    God Bless,
    Edward

  1. says:

    Unknown Dear Edward,

    People who have gone through many challenging milestones in life adopt a very mature and wise perspective to situations and you are testimony to this statement.

    Thanks for sharing that painful story. It is always a revelation to be in social work and I have gone through painful experiences myself when working with the elderly and handicapped.

    Despite whatever trials, temptations and tribulations, we need strength and faith to see ourselves through and to surrender to God completely that His will may be done and not hours.

    It is when we have seem the pain of others that we realize our little problems in life are not as bad as what many have experienced. As we pick ourselves up, looking upwards, then standing upright does not seem to be that difficult.

    Of course we can never understand why God gave man free will to live out his life and in that process, sometimes hurt others. But if we take a different perspective, perhaps we can go through this difficult journey called 'life'.

    Honestly, I take my hats off to Eliot's parents for their immovable faith in God. I would not have been able to react in the same way. They truly lived out Philp. 4:7,8 giving thanks in every situation, accepting the will of God in their lives. What a marvelous testimony of faith!

    You are another one who has been touched and healed by God and perhaps one day, if you would like to share your experience, do write it and send it to me here and it will be my pleasure to post it.

    Have a blessed weekend with your loved ones, Edward.

    Take care and blessings and peace to you and yours,
    Paula

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